I wanted to post an update to mums post from earlier in the week, firstly to say thank you very much for all the kind comments, especially the virtual hugs, you can’t begin to appreciate how much they help.
Secondly, I wanted to post a general update. Bob had all of his tests on Wednesday, and what a brave boy he was too, he didn’t utter a word of complaint, not even when the cannula was inserted (with no anaesthetic, as he is allergic to it!) We shall hopefully get all of his results at the end of February, when we see the paediatrician next, when we will know where we stand and what the next step is.
At hospital, I managed to speak to Bob’s paediatrician quickly, and mentioned my concerns and worries, especially in regards to school. He came up with a couple of suggestions, which I then took to the head teacher on Thursday morning, with the result that Bob will be starting back at school on Monday, on a part-time basis. We are aiming for three mornings a week just now, with me supplementing that at home, to be reviewed regularly. The head teacher is happy to support me in this, which is a huge weight off my mind – it will mean that he still gets the social aspect of school, but without his health being affected too drastically.
I feel a lot more positive now (it’s amazing the difference a few days, and a couple of good nights sleep, can make), there is really nothing more I can do until we get the test results in, which I am trying not to think about for the time being, or I’ll be bald by the time the appointment comes around!
Thanks again for all the helpful, kind comments, they really helped to lift me out of the cloud of gloom I found myself in earlier in the week, now to try to rearrange my carefully calculated week planner and study time for my OU course, to work round a whole new school timetable!
So there we have it, daughters feeling a bit more settled, sorted a few things out, obviously as any mother would be she was worried about Wednesday, but at the end of the day I'm still her mum - and you never stop worrying about your kids - no matter how big they get. As my daughter says thanks everybody for your support and kind comments.
As and when we get the results back we will keep you all updated.
I was happy to read this update Elaine. Your daughter sounds like I a said a strong willed lady. It definitely looks like she's getting to grips with everything now. Thats good to hear. So bob will be going back to school three days a week? Great. I bet he's happy? Well thanks for posting this Elaine. Let us know how things are going for you & your daughter. I hope things keep going well for her. Take care Charlie xx
ReplyDeleteI'm so glad your daughter is feeling more positive, and that the blog post and comments helped a little. She must feel so alone with all her problems sometimes, it's such a shame there isn't a support group she could go to. But! Positive thinking goes a long way, and it sounds like she has plenty of that. I do hope poor Bob gets a break soon, he has such a tough time of things. Sending good wishes and I'm hoping for the best for all of you, @Chaoskay xxx
ReplyDeleteHi Kay - there will be a support group before long cos we are setting one up for this area!! If it helps one other person then it will be worth it, already got ideas for it just need to think of a name and make a website once we have info through from relevant organisations
DeleteOh Bob is so brave having a cannula without anesthetic. Glad you are feeling more positive and the school situation is manageable x
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